Bev Axford-Hawx, mai shekaru 46, tana aiki a asibiti kuma ta ce kwanakinta masu wahala koyaushe suna da wahala, amma ba ta ɗauke shi da muhimmanci ba.
"Na kasance ina aiki a jirgin sama, mun zagaya da yawa," in ji ta. – Sau ɗaya a kowace shekara biyu na kan yi cikakken gwajin lafiya, amma a koyaushe mazaje ne suke yi. Ido kawai suka zaro ba su gane me ke damuna ba.
Dogayen kwanakin Bev, masu raɗaɗi da wahala sun kasance masu gajiyar jiki kuma suna da tasiri sosai akan aikinta, rayuwarta ta sirri har ma da amincewa da kai: “Ba ta da natsuwa. A duk lokacin da na shirya ko na halarci liyafa ko aka gayyace ni zuwa ɗaurin aure, nakan yi addu’a cewa kada ranar ta zo daidai da hailata.”
Lokacin da Bev ta koma ga kwararru, likitoci sun ce za ta sami sauki idan ta haifi ’ya’ya. Hakika, da farko ta sami sauƙi, amma sai ya zama mafi muni fiye da kowane lokaci. Bev ya riga ya ji tsoron yin magana da likitoci kuma ya yi tunanin cewa wannan wani bangare ne na mace.
Ob/gyn da abokin aikinta Bev Malcolm Dixon na bincikar alamunta kuma sun yi imanin cewa tana ɗaya daga cikin dubban mata waɗanda alamunta masu zafi suna da alaƙa da cututtukan von Willebrand na gado, wanda ke lalata ikon jini na jini. Babban abin da ke haifar da cutar shine ko dai rashin furotin a cikin jini, wanda ke taimaka masa ya yi kauri, ko kuma rashin aikin sa. Wannan ba hemophilia ba ne, amma cutar da jini mai tsanani ne wanda wani furotin ke taka muhimmiyar rawa.
A cewar Dixon, kusan kashi 2% na mutane a duniya suna da maye gurbi wanda ke haifar da cutar von Willebrand, amma mutane kaɗan ne suka san suna da su. Kuma idan maza ba su damu da wannan gaskiyar ba ta kowace hanya, to, mata za su ji rashin jin daɗi a lokacin haila da haihuwa. Likitan ya ce sau da yawa ana rasa lokacin jiyya, saboda mata ba sa la'akari da cewa dole ne su mai da hankali kan matsalar su.
"Lokacin da mace ta balaga, sai ta je wurin likita, wanda ya rubuta maganin hana haihuwa, wanda ba shi da tasiri sosai wajen sarrafa jinin da kansa idan yana da alaka da von Willebrand," in ji Dixon. – Kwayoyin ba su dace ba, wasu ana rubuta wa mace, da sauransu. Suna gwada magunguna daban-daban waɗanda ke taimakawa na ɗan gajeren lokaci amma ba sa magance matsalar har abada.”
Kwanaki masu raɗaɗi masu raɗaɗi, "magudanar ruwa", da buƙatar canzawa akai-akai samfuran tsabta ko da daddare, wani lokacin zubar da jini da raunuka masu tsanani bayan ƙananan raunuka, da kuma dogon farfadowa bayan hanyoyin hakori da tattooing sune manyan alamun cewa mutum yana da von Willebrand.
“Matsalar ita ce idan aka tambayi mata ko al’adar al’ada ce, sai su ce eh, domin dukan matan da ke cikin iyalinsu sun yi al’ada mai zafi,” in ji Dokta Charles Percy, mashawarcin likitan jini a asibitin Sarauniya Elizabeth da ke Birmingham. "Akwai rashin jituwa da yawa game da abin da ke al'ada, amma idan zubar jini ya ci gaba fiye da kwanaki biyar ko shida, yana da ma'ana a yi la'akari da von Willebrand."
A Birtaniya, kimanin mata 60 a shekara suna da hysterectomy (cire mahaifa). Koyaya, ana iya guje wa wannan ta hanyar ɗaukar matakan rigakafi a gaba.
"Da a ce mun fi sanin asalin von Willebrand, da mun guje wa tiyatar hysterectomy. Amma kawai ana watsi da shi azaman ganewar asali,” in ji Dokta Percy.
Bev Axford-Hawks ta yanke shawarar cire mahaifar kafin ta san game da yiwuwar maganin matsalar. Bayan kwana hudu da yi mata tiyatar ta sake jefa kanta cikin tsananin azaba ta fara zubar jini a ciki. An bukaci wani aikin gaggawa don cire babban jini a cikin yankin pelvic. Sannan ta yi kwana biyu a cikin kulawa mai zurfi.
Bayan ta warke, Bev ta yi magana da abokin aikinta Malcolm Dixon, wanda ya yarda cewa tana da dukkan alamun cutar von Willebrand.
Dokta Percy ya bayyana cewa, wasu matan suna amfana da sinadarin tranexamic acid da wuri, wanda ke rage zubar jini, yayin da wasu kuma ake ba su desmopressin, wanda ke kara yawan furotin na jini a cikin cutar von Willebrand.
Rayuwar Bev ta inganta sosai tun bayan tiyatar mahaifarta. Ko da yake za a iya guje wa irin waɗannan tsauraran matakan, ta yi farin ciki cewa yanzu za ta iya yin aiki kuma ta tsara hutu cikin kwanciyar hankali, ba tare da damuwa game da hailarta ba. Abin da kawai Beth ke damun ’yarta, da za ta iya kamuwa da cutar, amma Beth ta ƙudurta ta tabbatar da cewa yarinyar ba za ta fuskanci abin da za ta yi ba.
Sauran abubuwan da ke haifar da lokuta masu zafi
A wasu lokuta, ba a iya gano dalilin. Duk da haka, akwai wasu yanayi na likita da yawa da kuma wasu magunguna waɗanda zasu iya haifar da zubar da jini mai yawa. Waɗannan sun haɗa da:
- polycystic ovaries
– Cututtukan kumburin gabobin pelvic
- adenomyosis
– Rashin aiki thyroid gland shine yake
- polyps na cervix ko endometrium
– Maganin hana haihuwa na ciki