Don ƙarin koyo game da cystic fibrosis, Passeportsanté.net yana ba da zaɓi na ƙungiyoyi da shafukan gwamnati da ke hulɗa da batun cystic fibrosis. Za ku iya samun can ƙarin Bayani da tuntubar al'ummomi ko kungiyoyin tallafi ba ku damar ƙarin koyo game da cutar.

wuri

Faransa

Ciwon cystic fibrosis

An ƙirƙira a cikin 1965, wannan ƙungiyar tana nufin tallafawa marasa lafiya da danginsu a kusa da manufa 4: magani, kulawa, rayuwa mafi kyau, da wayar da kan jama'a. Hakanan yana tallafawa bincike sosai.

Ƙungiyar Gregory Lemarchal

An kafa shi a cikin 2007 bayan mutuwar mai zane Grégory Lamarchal da ke fama da cutar cystic fibrosis, wannan ƙungiyar tana da nufin inganta jin daɗi da ingancin rayuwar marasa lafiya da kuma wayar da kan jama'a don ba da gudummawar gabobin jiki.

Ƙungiyar-gregorylemarchal.org

Canada

Kanada Cystic Fibrosis Foundation

An kafa shi a cikin 1960, wannan tushe yana ba da gudummawar bincike kan cystic fibrosis. Manufar gidauniyar ita ce samar da albarkatu da bayanai don ingantacciyar magani da sarrafa cutar. Ana samun ƙasidu akan layi ko bisa tsari, cikin Ingilishi da Faransanci cystic fibrosis.ca

Cystic Fibrosis Quebec

Wannan ƙungiyar tana nufin taimaka wa mutanen da ke da cystic fibrosis a Quebec, bisa yarjejeniya da Gidauniyar Cystic Fibrosis na Kanada.

aqfk.qc.ca

Kwamitin Lardi na Manya da Cystic Fibrosis

An kirkiro shi a cikin 1985, Kwamitin Lardi na Cystic Fibrosis Adults (CPAFK) ya haɗu da fiye da 500 Quebec manya tare da cystic fibrosis. Wannan kwamiti ne na tallafi wanda kuma ke da nufin haɓakawa da kare haƙƙoƙi da muradun manya waɗanda ke da cystic fibrosis a Quebec.

cpafk.qc.ca

Jagoran Lafiya na gwamnatin Quebec

Don ƙarin koyo game da kwayoyi: yadda ake shan su, menene contraindications da yuwuwar hulɗa, da sauransu.

www.guidesante.gouv.qc.ca

Belgium

Ƙungiyar Belgian don Yaki da Cystic Fibrosis

gumi.be

Swiss

Ƙungiyar Swiss don Cystic Fibrosis (SFCH)

cfch

Amurka

Cystic Fibrosis Foundation

www.cff.org